Introduction
Living with type 1 diabetes mellitus (T1DM) has been associated with diabetes-related distress and a high prevalence of depression and anxiety, which impacts the ability to optimise glycaemic control. When people with diabetes are better informed and more motivated, they are likely to experience improved diabetic control and higher quality of life. However, there is a need to better understand the challenges of T1DM self-management with subcutaneous insulin infusion (CSII) systems. This study aims to provide a qualitative insight into the experiences of people living with T1DM who use an insulin pump by introducing the Optimal Health Wheel as a framework for qualitative data analysis. The Optimal Health Wheel is the centrepiece of the Optimal Health Program, a self-management program for people living with a chronic illness.
Method
Patients attending a specialist T1DM outpatient clinic were invited to share their experience of living with an insulin pump. Participants took part in either a semi-structured interview or focus group, which was audio-recorded and transcribed. The data was analysed using a framework approach based on the Optimal Health Wheel.
Results
A total of 15 individuals participated in a semi-structured interview (n=7) or a focus group (n=8). The majority of participants were female (n=12), aged between 20 and 60 years with a duration of pump use ranging from 7 weeks to 9.5 years. A total of 19 sub-themes were identified under the six Optimal Health Wheel domains.
Conclusion
The Optimal Health Wheel is a useful framework for qualitative data analysis and highlighted key themes, which provide insight into the lives of people living with T1DM and an insulin pump. These concepts should be at the forefront for all health care professionals who care for pump users, including psychological support services, in order to provide a holistic approach to their care and optimise their management.